People living with lupus and their relatives, medical students or even for non-specialist doctors are regularly confronted with questions about lupus, the disease with 1000 faces. While some will have access to validated information, too many will end up on the internet, where “word of mouth”, uncontrolled data, rumours or unconfirmed research will increase their confusion, create anxiety or even lead them to incorrect actions.

In 2010, under the lead of Professor Maxime Dougados,  the French centres of reference on lupus addressed this issue through the publication of booklet “100 questions about lupus”. This booklet was quickly successful amongst patients and patient associations, in France and the neighbouring French speaking countries. As the knowledge about lupus continued to progress, the book was updated on several occasions, each time with the cooperation between French renowned lupus experts and patient associations.