{"id":2269,"date":"2022-07-29T01:04:25","date_gmt":"2022-07-29T01:04:25","guid":{"rendered":"https:\/\/lupus100.org\/?page_id=2269"},"modified":"2023-03-30T11:09:11","modified_gmt":"2023-03-30T11:09:11","slug":"about-lupus","status":"publish","type":"page","link":"https:\/\/lupus100.org\/cs\/about-lupus","title":{"rendered":"About lupus"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"2269\" class=\"elementor elementor-2269\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-08a78ea elementor-section-full_width elementor-hidden-mobile elementor-section-height-default elementor-section-height-default\" data-id=\"08a78ea\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-c87a221 elementor-hidden-mobile\" data-id=\"c87a221\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2a0a2c0 elementor-widget elementor-widget-text-editor\" data-id=\"2a0a2c0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>P\u0159ibli\u017en\u011b<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3da3e7a elementor-widget elementor-widget-text-editor\" data-id=\"3da3e7a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t100 ot\u00e1zek\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2f9739c elementor-widget elementor-widget-text-editor\" data-id=\"2f9739c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Lid\u00e9 \u017eij\u00edc\u00ed s lupusem a jejich p\u0159\u00edbuzn\u00ed, zdravotn\u00ed sestry, studenti medic\u00edny nebo i l\u00e9ka\u0159i nespecialist\u00e9 jsou pravideln\u011b konfrontov\u00e1ni s ot\u00e1zkami o lupusu<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-89d68d0\" data-id=\"89d68d0\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-dccd80e\" data-id=\"dccd80e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d724669 elementor-section-full_width elementor-hidden-widescreen elementor-hidden-desktop elementor-hidden-laptop elementor-hidden-tablet_extra elementor-hidden-tablet elementor-hidden-mobile_extra elementor-section-height-default elementor-section-height-default\" data-id=\"d724669\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-01b0de5\" data-id=\"01b0de5\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0c27c5b elementor-widget elementor-widget-image\" data-id=\"0c27c5b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"291\" src=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled-1024x373.jpg\" class=\"attachment-large size-large wp-image-716\" alt=\"\" srcset=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled-1024x373.jpg 1024w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled-300x109.jpg 300w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled-768x280.jpg 768w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled-1536x560.jpg 1536w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled-2048x746.jpg 2048w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled-595xh.jpg 595w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-31062a7\" data-id=\"31062a7\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9997be6 elementor-widget elementor-widget-text-editor\" data-id=\"9997be6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>P\u0159ibli\u017en\u011b<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9998814 elementor-widget elementor-widget-text-editor\" data-id=\"9998814\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>IN<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0ce763a elementor-widget elementor-widget-text-editor\" data-id=\"0ce763a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h1>100 ot\u00e1zek<\/h1>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a1483b4 elementor-widget elementor-widget-text-editor\" data-id=\"a1483b4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Lid\u00e9 \u017eij\u00edc\u00ed s lupusem a jejich p\u0159\u00edbuzn\u00ed, zdravotn\u00ed sestry, studenti medic\u00edny nebo i l\u00e9ka\u0159i nespecialist\u00e9 jsou pravideln\u011b konfrontov\u00e1ni s ot\u00e1zkami o lupusu<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-bac61f4 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"bac61f4\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-cbddbfb elementor-invisible\" data-id=\"cbddbfb\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInLeft&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b34e740 elementor-widget elementor-widget-text-editor\" data-id=\"b34e740\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3>Sto ot\u00e1zek o lupusu<\/h3>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ca9aca8 elementor-section-full_width elementor-reverse-mobile elementor-section-height-default elementor-section-height-default\" data-id=\"ca9aca8\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-wide\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-df163ec elementor-invisible\" data-id=\"df163ec\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInLeft&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-baa6b3a elementor-widget elementor-widget-text-editor\" data-id=\"baa6b3a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Lid\u00e9 \u017eij\u00edc\u00ed s lupusem a jejich p\u0159\u00edbuzn\u00ed, zdravotn\u00ed sestry, studenti medic\u00edny nebo i l\u00e9ka\u0159i nespecialist\u00e9 jsou pravideln\u011b konfrontov\u00e1ni s ot\u00e1zkami o lupusu, nemoci s 1000 tv\u00e1\u0159emi. Zat\u00edmco n\u011bkte\u0159\u00ed z nich maj\u00ed p\u0159\u00edstup k ov\u011b\u0159en\u00fdm informac\u00edm, p\u0159\u00edli\u0161 mnoho jich skon\u010d\u00ed na internetu, kde \"\u00fastn\u00ed pod\u00e1n\u00ed\", nekontrolovan\u00e9 \u00fadaje, f\u00e1my nebo nepotvrzen\u00e9 v\u00fdzkumy zvy\u0161uj\u00ed jejich zmatek, vyvol\u00e1vaj\u00ed \u00fazkost nebo je dokonce vedou k nespr\u00e1vn\u00e9mu jedn\u00e1n\u00ed.<\/p><p>Ji\u017e v roce 2010 se francouzsk\u00e1 referen\u010dn\u00ed centra pro lupus pod veden\u00edm profesora Maxima Dougadose zab\u00fdvala touto problematikou a vydala bro\u017euru \"100 ot\u00e1zek o lupusu\". Tato bro\u017eura m\u011bla mezi pacienty a sdru\u017een\u00edmi pacient\u016f ve Francii a sousedn\u00edch francouzsky mluv\u00edc\u00edch zem\u00edch rychl\u00fd \u00fasp\u011bch. Jak se znalosti o lupusu d\u00e1le rozv\u00edjely, byla tato kniha n\u011bkolikr\u00e1t aktualizov\u00e1na, poka\u017ed\u00e9 ve spolupr\u00e1ci francouzsk\u00fdch renomovan\u00fdch odborn\u00edk\u016f na lupus a sdru\u017een\u00ed pacient\u016f.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-41f645a elementor-invisible\" data-id=\"41f645a\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInRight&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f7b4525 elementor-widget elementor-widget-image\" data-id=\"f7b4525\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1920\" height=\"700\" src=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/06\/Rectangle-78.jpg\" class=\"attachment-full size-full wp-image-1076\" alt=\"\" srcset=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/06\/Rectangle-78.jpg 1920w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/06\/Rectangle-78-300x109.jpg 300w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/06\/Rectangle-78-1024x373.jpg 1024w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/06\/Rectangle-78-768x280.jpg 768w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/06\/Rectangle-78-1536x560.jpg 1536w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/06\/Rectangle-78-595xh.jpg 595w\" sizes=\"(max-width: 1920px) 100vw, 1920px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-f90c984 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"f90c984\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-wide\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-594a725 elementor-invisible\" data-id=\"594a725\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInLeft&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-95c5ab7 elementor-widget elementor-widget-image\" data-id=\"95c5ab7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1024\" height=\"683\" src=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/13.jpg\" class=\"attachment-full size-full wp-image-2286\" alt=\"\" srcset=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/13.jpg 1024w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/13-300x200.jpg 300w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/13-768x512.jpg 768w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/13-595xh.jpg 595w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-00e15a6 elementor-invisible\" data-id=\"00e15a6\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInRight&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-70fa008 elementor-widget elementor-widget-text-editor\" data-id=\"70fa008\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>D\u00edky zapojen\u00ed do evropsk\u00e9 referen\u010dn\u00ed s\u00edt\u011b ReCONNET, kter\u00e1 sdru\u017euje p\u0159edn\u00ed mezin\u00e1rodn\u00ed odborn\u00edky na lupus a dal\u0161\u00ed onemocn\u011bn\u00ed pojivov\u00e9 tk\u00e1n\u011b, upozornila organizace Lupus Europe na pot\u0159ebu m\u00edt podobn\u00e9 informace k dispozici nejen ve Francii, ale v cel\u00e9 Evrop\u011b, aby v\u0161ichni lid\u00e9 \u017eij\u00edc\u00ed s lupusem v Evrop\u011b mohli vyu\u017e\u00edvat kvalitn\u00ed informace v jazyce, kter\u00e9mu rozum\u00ed. Vznikl projekt na p\u0159eklad a \u00fapravu francouzsk\u00e9 bro\u017eury, kter\u00fd byl v roce 2021 schv\u00e1len s\u00edt\u00ed ERN ReCONNET.<\/p><p>V uplynul\u00fdch m\u011bs\u00edc\u00edch vznikly ve spolupr\u00e1ci mezi poradn\u00ed s\u00edt\u00ed pacient\u016f Lupus Europe, l\u00e9ka\u0159i specializuj\u00edc\u00edmi se na lupus a spole\u010dnost\u00ed Katana Sante (vlastn\u00edkem s\u00e9rie 100 ot\u00e1zek) webov\u00e9 str\u00e1nky, na kter\u00e9 se dnes dost\u00e1v\u00e1te. Seznam ot\u00e1zek byl aktualizov\u00e1n tak, aby l\u00e9pe zohled\u0148oval sou\u010dasnou evropskou realitu. V\u0161echny odpov\u011bdi byly znovu zkontrolov\u00e1ny z hlediska jejich spr\u00e1vnosti a aktu\u00e1lnosti. P\u0159eklady byly provedeny se zvl\u00e1\u0161tn\u00ed p\u00e9\u010d\u00ed, aby byla zaji\u0161t\u011bna spr\u00e1vnost i srozumitelnost pro nerodil\u00e9 mluv\u010d\u00ed. Douf\u00e1me, \u017ee v\u00e1m toto \u010dten\u00ed pom\u016f\u017ee naj\u00edt odpov\u011bdi na va\u0161e ot\u00e1zky t\u00fdkaj\u00edc\u00ed se lupusu.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-f6e7cf7 elementor-section-full_width elementor-reverse-mobile elementor-section-height-default elementor-section-height-default\" data-id=\"f6e7cf7\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-wide\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-b427b72 elementor-invisible\" data-id=\"b427b72\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInLeft&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a4e18bc elementor-widget elementor-widget-text-editor\" data-id=\"a4e18bc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Pokud jde o n\u00e1sleduj\u00edc\u00ed kroky, vid\u00edme dv\u011b kl\u00ed\u010dov\u00e9 oblasti prob\u00edhaj\u00edc\u00edho rozvoje:<\/p><p>Na\u0161\u00edm c\u00edlem je p\u0159elo\u017eit tyto informace do co nejv\u011bt\u0161\u00edho po\u010dtu evropsk\u00fdch jazyk\u016f a sna\u017eit se o maxim\u00e1ln\u00ed pokryt\u00ed pacient\u016f a l\u00e9ka\u0159\u016f v\u0161ude tam, kde m\u016f\u017eeme zajistit kvalitn\u00ed p\u0159eklad a korekturu zku\u0161en\u00fdmi l\u00e9ka\u0159i i z\u00e1stupci pacient\u016f. Douf\u00e1me, \u017ee zp\u0159\u00edstupn\u011bn\u00ed t\u011bchto informac\u00ed na webu v jejich vlastn\u00edm jazyce pom\u016f\u017ee lidem \u017eij\u00edc\u00edm s lupusem z\u00edskat kvalitn\u00ed odpov\u011bdi na jejich ot\u00e1zky a odklonit se od hled\u00e1n\u00ed odpov\u011bd\u00ed na zav\u00e1d\u011bj\u00edc\u00edch webov\u00fdch str\u00e1nk\u00e1ch nebo soci\u00e1ln\u00edch s\u00edt\u00edch a pom\u016f\u017ee praktick\u00fdm l\u00e9ka\u0159\u016fm, zdravotn\u00edm sestr\u00e1m a dal\u0161\u00edm zdravotnick\u00fdm pracovn\u00edk\u016fm prohloubit jejich znalosti o tomto onemocn\u011bn\u00ed a jeho mnoha aspektech.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-6748e6e elementor-invisible\" data-id=\"6748e6e\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInRight&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-53072b2 elementor-widget elementor-widget-image\" data-id=\"53072b2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1000\" height=\"667\" src=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/12.jpg\" class=\"attachment-full size-full wp-image-2285\" alt=\"\" srcset=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/12.jpg 1000w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/12-300x200.jpg 300w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/12-768x512.jpg 768w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/07\/12-595xh.jpg 595w\" sizes=\"(max-width: 1000px) 100vw, 1000px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-81f2652 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"81f2652\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-wide\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-7b0dd65 elementor-invisible\" data-id=\"7b0dd65\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInLeft&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-979deed elementor-widget elementor-widget-image\" data-id=\"979deed\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"2560\" height=\"1050\" src=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled1.jpg\" class=\"attachment-full size-full wp-image-1023\" alt=\"\" srcset=\"https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled1.jpg 2560w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled1-300x123.jpg 300w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled1-1024x420.jpg 1024w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled1-768x315.jpg 768w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled1-1536x630.jpg 1536w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled1-2048x840.jpg 2048w, https:\/\/lupus100.org\/wp-content\/uploads\/2022\/05\/Header-Q100-scaled1-595xh.jpg 595w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-85c10ed elementor-invisible\" data-id=\"85c10ed\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;animation&quot;:&quot;fadeInRight&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e8e569f elementor-widget elementor-widget-text-editor\" data-id=\"e8e569f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Za druh\u00e9 by bylo naivn\u00ed si myslet, \u017ee tento seznam 100 ot\u00e1zek vy\u010derp\u00e1vaj\u00edc\u00edm zp\u016fsobem, jednou prov\u017edy, odpov\u00edd\u00e1 na v\u0161echny ot\u00e1zky, kter\u00e9 by \u010dlov\u011bk mohl m\u00edt ohledn\u011b lupusu, nebo \u017ee poskytnut\u00e9 odpov\u011bdi vy\u0159e\u0161\u00ed v\u0161echny probl\u00e9my. Tento soubor informac\u00ed nikdy nenahrad\u00ed dialog mezi pacientem a jeho lupusov\u00fdm l\u00e9ka\u0159em. Douf\u00e1me v\u0161ak, \u017ee povzbud\u00ed pacienty k tomu, aby vzn\u00e1\u0161eli sv\u00e9 ot\u00e1zky a z\u00edsk\u00e1vali pot\u0159ebn\u00e1 vysv\u011btlen\u00ed.<\/p><p>Na na\u0161\u00ed stran\u011b zav\u00e1d\u00edme proces, kter\u00fd umo\u017en\u00ed udr\u017eovat v\u0161echny odpov\u011bdi aktu\u00e1ln\u00ed a aktualizovat seznam ot\u00e1zek podle toho, jak se objev\u00ed nov\u00fd v\u00fdvoj nebo jak dostaneme nov\u00e9 ot\u00e1zky od na\u0161ich \u010dten\u00e1\u0159\u016f.<\/p><p>Douf\u00e1me, \u017ee \u010dten\u00e1\u0159\u016fm, a\u0165 u\u017e se jedn\u00e1 o osoby \u017eij\u00edc\u00ed s lupusem, nebo o zdravotnick\u00e9 pracovn\u00edky, kte\u0159\u00ed se s touto nemoc\u00ed setk\u00e1vaj\u00ed, pomohou poskytnut\u00e9 z\u00e1kladn\u00ed znalosti zah\u00e1jit plodn\u00fd a informovan\u00fd dialog s odborn\u00edky na lupus nebo s pacientsk\u00fdmi organizacemi a roz\u0161\u00ed\u0159it tak sv\u00e9 znalosti o t\u00e9to nemoci a kompetence p\u0159i jej\u00edm zvl\u00e1d\u00e1n\u00ed.<\/p><p>\u0160\u0165astn\u00e9 \u010dten\u00ed!<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>About 100 QUESTIONS People living with lupus and their relatives, nurses, medical students or even for non-specialist doctors are regularly confronted with questions about lupus About IN 100 QUESTIONS People living with lupus and their relatives, nurses, medical students or even for non-specialist doctors are regularly confronted with questions about lupus 100 QUESTIONS TO ASK [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-2269","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/lupus100.org\/cs\/wp-json\/wp\/v2\/pages\/2269","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lupus100.org\/cs\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/lupus100.org\/cs\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/lupus100.org\/cs\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/lupus100.org\/cs\/wp-json\/wp\/v2\/comments?post=2269"}],"version-history":[{"count":38,"href":"https:\/\/lupus100.org\/cs\/wp-json\/wp\/v2\/pages\/2269\/revisions"}],"predecessor-version":[{"id":3934,"href":"https:\/\/lupus100.org\/cs\/wp-json\/wp\/v2\/pages\/2269\/revisions\/3934"}],"wp:attachment":[{"href":"https:\/\/lupus100.org\/cs\/wp-json\/wp\/v2\/media?parent=2269"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}